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Year : 2021  |  Volume : 1  |  Issue : 1  |  Page : 2-6

Saudi experience of adherence with quality indicators of health care for childhood systemic lupus erythematosus

King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia

Correspondence Address:
Dr. Sulaiman M Al-Mayouf
Department of Pediatrics, Pediatric Rheumatology, King Faisal Specialist Hospital and Research Center, Alfaisal University, Po Box 3354, Riyadh 11211
Saudi Arabia
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Source of Support: None, Conflict of Interest: None

DOI: 10.4103/ara.ara_4_21

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Objective: The objective of the study is to report the compliance with childhood-onset systemic lupus erythematosus-quality indicators (cSLE-QIs) in a Saudi Tertiary Childhood Lupus Clinic. Methods: In this cross-sectional, observational study, charts of patients with cSLE followed regularly between January 2010 and December 2019 at King Faisal Specialist Hospital and Research center, Riyadh, were reviewed. Data were collected at the last follow-up visit comprising the compliance with the quality of medical care of patient with cSLE using cSLE-QIs, which capturing diagnostic testing, lupus nephritis, medication, bone health, ophthalmological assessment, vaccination, and transition. Pregnancy domain and smoking cessation were not measured in this study. Results: A total of 66 (58 females) cSLE patients were assessed. The median age at disease onset was 10 (interquartile range [IQR]: 7.0–11.0) years, and the median disease duration was 4 (IQR: 3.0–6.0) years. Most of the patients had nephritis (69.7%), while cardiovascular and neuropsychiatric features were 37.7% and 18.8%, respectively. The adherence with cSLE-QIs differed markedly; performance of diagnostic testing, medication management including corticosteroid weaning, and bone health was high while the compliance with flu vaccine, eye screening, photoprotection, and education about cardiovascular risk was lower. There was a noticeable variability between the international childhood lupus clinics. Conclusion: Providing cSLE patients with a high quality of health care is challenging without the proper guidance. Hopefully, these findings will enhance the adherence to cSLE-QIs and increase the likelihood of the desired outcome.

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